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This web site is brought to you by the Palliative Care Policy Center (PCPC). PCPC was formerly known as the Center for Palliative Care Studies.

[iicn]MegaSearch over 5,000 pages of authoritative full-text content on end-of-life care.

White PaperThe white paper Living Well at the End of Life synthesizes research on chronic illnesses in the last phase of life.

Heart FailureDownload helpful guides to Living With Advanced Congestive Heart Failure (CHF) or Living With Advanced Lung Disease in PDF format. You may also read the guides in HTML format.

handbook for mortalsRead full text from the Handbook for Mortals, your guide to end of life care.

For a summary of key issues in end of life care, download the full text (MS Word format) of Joanne Lynn's testimony before the Senate Special Committee on Aging. Exhibits cover death trends, suggestions for immediate action, and tips for health care providers on how to approach improvement projects.

The Palliative Care Policy Center (PCPC) offers expert support to hospitals, nursing homes, health systems, hospices, and other organizations that serve individuals nearing the end of life. We seek to help you make breakthrough change happen in areas that matter to patients and families. A key goal of our activities is to gather information and create a common database that can help improve the experience of dying patients and their families everywhere. We make our findings and lessons learned available to all so that all who aim to improve care for serious illness may succeed. Learn more...

Sick To Death: Reforming Health Care For The Last Years Of Life
Read full text online... Sick To Death: Reforming Health Care For The Last Years Of Life

Joanne Lynn pulls no punches in her articulate and non-nonsense manifesto for reforming health care for the last years of life. Just a few generations ago, serious illness, like hazardous weather, arrived with little warning, and people either lived through it or died. In this important, convincing, and long-overdue call for health care reform, Joanne Lynn demonstrates that our current health system, like our concepts of health and disease, developed at a time when life was mostly short, serious illnesses and disabilities were common at every age, and dying was quick. Today, health care and community services are not set up to meet the needs of the large number of people who face a prolonged period of progressive illness and disability before death. Lynn offers what she calls an "owner's manual for the health care system," with facts, strategies, and action plans for genuine reform.

You can view a video interview with author Joanne Lynn about this book that is playing at kaisernetwork.org.

Improving Care at the End of Life: A Sourcebook for Clinicians and Managers.
Read full text online... Sourcebook

PCPC has worked with nearly one hundred health care organizations to implement effective quality improvement projects in end of life care. With the Institute for Healthcare Improvement (IHI), the Center has directed two successful Breakthrough Series Collaboratives on improving end of life care. New collaboratives form several times a year. Results of previous collaboratives have been published in its authoritative book.

The Common Sense Guide to Improving Palliative Care
Read full text online... The Common Sense Guide to Improving Palliative Care

oanne Lynn and colleagues give practical advice on how to get measurable quality improvements in palliative care provided by palliative care consult teams, nursing homes, hospices, intensive care units (ICU) and other settings. The methods given are "common sense", easy to understand, easy to implement, and easy to measure.